Sins of the NDIS

An outpouring of frustration, grief and anger by people harmed by NDIA.

NDIS harms people. These sins breach page after page of the NDIS Act, including its most fundamental elements.

Statements of the harm experienced by NDIS participants and their carers

I’ve suffered greatly from my assistance dog plus other things not being funded. I’ve been told all my disabilities are 100% curable and have been abused by NDIA staff.

8 rejections for a child who is blind, in a wheelchair, mute, can’t swallow, and a heap of other disabilities.

Telling a child participant (9 yo) that using old equipment will “make your fingers stronger” and using it to justify denying funding a new modern device (e.g. old Perkins Brailler from 1970s vs refreshable braille display).

My son went blind because of the NDIS refusal to read reports stating this would occur without more supports…reduced 3 times.

“I am an OT. A lot of my clients are traumatised by NDIS processes and being denied essential services. I am traumatised by the NDIS and having to defend my work when planners ignore my professional recommendations.”

Giving medical or technical opinions when they are not qualified to do so.”

I want my hopefully soon death due to NDIS neglects to mean something if I have to die because of NDIS negligence then I hope this prevents further deaths. 

I am a mother to a 15-year-old beautiful daughter. NDIS has taken my daughter’s and my soul and rights to live.

Incorrect child information in my sons plan – totally different child.

The NDIA are stalling on providing information required under a directive at AAT.

My bothers latest plan had core supports funding cut by close to 70%. This has left him with 4 hours per week in the home assistance. He has a complex physical and intellectual disability, lives by himself and is wheelchair dependent. This has resulted in serious safety risks for my brother, worsening of severe pressure wounds and he is now at high risk for limb amputation and sepsis. Comprehensive reports and arguments were provided through the s100 decision review process, but they maintained the original decision. The NDIA are stalling on providing information required under a directive at AAT. Inadequate support coordination has led to me needing to spend at least 40 hours per week supporting my brother, who lives an hour away from me. This is impacting on my own child’s development who has ASD 3, my mental health and my financial resources.

I am a both an NDIS participant with complex needs and a single mother of a child who is also has disabilities. I am absolutely exhausted, traumatised and disgusted with the way the NDIA has fought me for 2 straight years. I’ve been wanting to get involved with a class-action suit or any actions that will finally hold this Agency responsible for the extensive suffering and even deaths of PWDs who are simply asking for our basic human rights and needs to be met. I have never been suicidal before engaging with the NDIA, but in 2 years since my first plan, I have been actively suicidal twice and my functional capacity has plummeted. I cannot work even if I had capacity because fighting for a plan that meets my needs is literally a full-time job. 🙁

I am absolutely exhausted, traumatised and disgusted with the way the NDIA has fought me for 2 straight years.

We have felt bullied and delayed by their numerous lawyers and have felt this unnecessary process to be traumatising.

I have been at AAT conciliation with NDIA’s lawyers for two years over an essential $2000 piece of equipment. The NDIA lawyers’ fees during this time have, I suspect, far exceeded the original cost of the piece of equipment. Originally we submitted 2-3 specialist reports as evidence of need, and along the way have had to submit numerous quotes and additional reports, all stating what the original quotes stated. We have felt bullied and delayed by their numerous lawyers and have felt this unnecessary process to be traumatising. This saga has delayed my son’s access to this essential piece of equipment and putting him in unnecessary harms’ way while he cannot access it. This is the bit that is particularly upsetting for me.

Unskilled people dealing with complex medical circumstances.

Many, many issues with mine and my son’s plans left me suicidal and then in hospital. 

A participant reported they got two plans in one – the first part of the plan was their plan and then the last part – capacity building and capital supports was someone else’s plan! ‘Sam would like to walk independently as a goal. My child’s name is not Sam, and they walk just fine.’ 

I want to sue NDIS for the pain and suffering and, causing more damage and setting me back with my functional gains and the torment and the cruel degrading inhumane treatment by staff and plan managers. 

My daughter suffered a severe head trauma as they wouldn’t fund her BSP until the damage was done. 

I acquired spinal injury from pushing a 200kg wheelchair for 15 months waiting for repair. 

The unsatisfactory way the agency is run. Untrained unqualified staff push vulnerable, already disadvantaged people to stress and exhaustion. I am physically disabled later in life. Nobody has made me feel more disabled than the agency who is supposed to help support us. 

As a participant and a family member of a participant I have suffered emotional distress and harm. Planner outright denying supports. Mistakes in plan construction meaning funds unavailable, needing to cancel supports. 

We have had an awful time currently with the AAT process for my adult daughter. She was left without funding and supports for a week I couldn’t work our business suffered. 

My son’s NDIS was cancelled without notice as he turned 7. I was told multiple times that a meeting was to be held before this happened but I got a call and it was gone. didn’t even get a chance to say goodbye to his therapists. 

I have been denied SDA for my son due to being under 18 I have to lift him in and out of the bath he’s 50kg. 

Extremely sensitive documents discovered in the wild on the PUBLIC web: ‘…my husband searched for my email address on google. He found the full-service agreement between my daughter and [name of service provider] for support coordination.’ 

My daughter has cerebral palsy and bilateral polymicrogyria and I’m tired of fighting and being underfunded constantly. 

I am a professional advocate/NDIS appeals advocate and I believe the system is failing in its purpose, leaving people without support causing harm. 

I have been at AAT on behalf of my adult daughter for 11 months with no resolution in sight. I’m exhausted providing so much care due to an underfunded plan whilst trying my best to navigate the AAT and start preparing for a hearing with no legal assistance.